Resources for hemophilia, genetics, and gene therapy research

The resources listed below may help you learn more about hemophilia, living with hemophilia, the complexity of genetics, and gene therapy research. The groups, agencies, and resources included in this list are independent organizations and are not affiliated with Spark Therapeutics. By clicking a link on this page, you are leaving the Hemophilia Forward® website. Spark assumes no responsibility for any content you may encounter outside of this website.

Hemophilia Organizations

Hemophilia Federation of AmericaVisit Now
National Hemophilia FoundationVisit Now
The Coalition for Hemophilia BVisit Now
World Federation of HemophiliaVisit Now
HFA: Local Member Organization DirectoryVisit Now
Hemophilia Treatment Center (HTC) DirectoryVisit Now
National Hemophilia Foundation Regional Chapter DirectoryVisit Now
Believe Limited:
The Science FairVisit Now

Gene therapy research and genetics

American Society of Gene & Cell TherapyVisit Now
FDA: What Is Gene Therapy?Visit Now
FDA: What Is Gene Therapy? (Spanish)Visit Now
Genes in LifeVisit Now
Medline Plus: GeneticsVisit Now
NIH Genetic and Rare Diseases Information CenterVisit Now
NIH National Human Genome Research InstituteVisit Now

Additional resources

Caregiver Action NetworkVisit Now
ClinicalTrials.govVisit Now
EURORDISVisit Now
EveryLife FoundationVisit Now
Global GenesVisit Now
National Organization for Rare DisordersVisit Now
National Society of Genetic CounselorsVisit Now