Create Your Discussion Guide

Gene therapy clinical trials are driving the science of hemophilia forward and transforming the future for the hemophilia community. If you or a loved one is interested in learning more about gene therapy or considering participating in a clinical trial, you know that a shared decision-making conversation with your healthcare team is essential.

Use the discussion guide to help you get all the information you need to understand what gene therapy research is and what it could mean for you. Just complete the form below, and then print or email the guide to review with your healthcare team at your next appointment.

Shared decision-making means you and your healthcare team decide together how best to achieve your goals for managing hemophilia.

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On a scale of 1 to 5, how would you rate your understanding of the basics of gene therapy?

On a scale of 1 to 5, how would you rate your understanding of gene therapy clinical trials and how they are conducted?

Select the topics you are interested in learning more about (selection required):

Give a heads up. Let your healthcare provider know that you want to talk about gene therapy research at your upcoming appointment. It will help them come prepared—just like you.

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